A bouquet of problems

My birthday month, November, had a great start by doing what I like most, giving my HIV activism a boost. Between 4-7 November I was in Istanbul for a face-to-face ‘Skills Training to Empower Patients’ (STEP-UP) and networking weekend organized by the European AIDS Treatment Group (EATG) Training Academy.

After more than a year of online training because of Covid 19, I got a chance to finally meet my fellow European and Asian HIV activists and advocates. Everyone was dying to meet and finally get to know each other more and share our experiences because in the end it is really about community voices. It was quite interesting to experience the difference between zoom meetings and ‘real’ talks together.

As we all came from different parts of Europe and Central Asia we had to speak different languages, so some were speaking English and others Russian. But in the end we all share the same goal and then language barriers can be overcome. While chatting with different people and listening to presentations, I realized that we all share what I call a “Bouquet of problems”;  Stigma, discrimination and criminalization.

During the weekend I learnt so many new insights. For example, my friends from Greece and Georgia shared with us that among people using drugs, women are way more stigmatised than men. Or that in some countries mothers living with HIV are still criminalised when breastfeeding and that they are not receiving any support from the health system to obtain baby formula or do medical checks during their breastfeeding period. 

Yet, all the new information led me to ask so many questions. For example, why are especially women still so vulnerable to attack and deliberate stigmatision? There are so many new developments and guidelines, for example on breastfeeding, there is U=U, etc. In 2021, women living with hiv should not be criminalised at all. I am telling you, no mother would wish to transmit HIV to her child on purpose!  

It shocked me to hear that there are still 130 (!) countries where people living with HIV are injustly criminalised, and in 50 countries we can be prosecuted because they have outdated laws related to sexual, but also on spitting, biting and even breastfeeding. People, after 40 years of HIV/AIDS, instead of being stigmatised we must focus our fight on removing inequalities and to demand the right to access HIV treatment and receive good medical care.

Our training was epic, there was no taboo, we talked about many topics and received useful tools that we can use in our communities. It feels like I have known this group for such a long time as we shared so many laughs, jokes and fun. It made me wonder what more we could have achieved if we could have done all sessions face-to-face instead of via zoom. I gained so many friends, which is fantastic. These moments of togetherness bring back humanity to our lives.

By Sunday, we all went back home empowered with knowledge that we will share with our community and use to convince our decision-makers and politicians to DECRIMINALISE people living with HIV!

Thank you EATG for organising the STEP-UP training and making this such an inspiring weekend, we shall meet again my Activist Friends. Keep up the fight, we are on the winning side since we DARE to speak up about our bouquet of problems!

Peace,

Eliane 

My Heroes of Hope

As an African artist living with HIV in the Netherlands for more than 15 years now, I continue to experience a lot of stigma and discrimination based on me being open about my HIV and my beautiful colour. I realized that for many people with a migrant background stigma is indeed still a major issue. So, in April this year I launched Stories of Hope which aims to inspire people to share their talent as a positive way to deal with and raise awareness about stigma.

On 18 July, Mandela Day, together with the other ‘Heroes of Hope’ we shared our stories with the world!

Sharing our stories on Mandela’s birthday was a perfect moment as he continues to be a big inspiration to me and the world. I have learned a lot from his life experience as a freedom fighter, reconciler, unifier and inspirer. In the spirit of Mandela’s legacy, I truly believe that Stories of Hope will give people inspiration to fight stigma and bring positive change in our communities.

Stories of Hope can be visited at www.storiesofhope.nl. My dream is that our collection will continue to grow in the Netherlands and also beyond. Please vist the website and feel free to connect me to people that would like to share their inspiring stories with us. We believe in your talent and let’s fight stigma together!

A very special thank you to the European Aids Treatment Group for supporting me to make Stories of Hope happen!

Peace,

Eliane

I AM… OPEN

Hello my lovely people. It is always great to have something to keep you positively busy during these strange Covid times. So I am very excited to share a new initiative called stories of hope with you. I will be leading this for the coming 4 months.

Just a little background: I was lucky to follow the STEP- UP training organised by the European AIDS Treatment Group (EATG). Together with many other HIV activists and advocates I gained a lot of extra knowledge on HIV. EATG also gave us the opportunity to pitch a project we are passionate about and I decided to share my dream of reaching out to people living with HIV with a migrant background with them.

And guess what? My project was selected and I received a small grant to launch stories of hope! This is such a great opportunity because as HIV stigmafighter I dare to speak out against anyone who stigmatises or discriminates people in my city Amersfoort, the Netherlands and Worldwide.

I love Amersfoort and during my time here, I experienced stigma from healthcare providers, people on the street and employers. It happens everywhere, right now! So I want other talented people that never let stigma stand in their way to join me and inspire people still facing stigma today.

My journey will start in Liendert, an urban area with more than 7,500 people of which 52% has a migrant background. I want to reach out to them and provide a safe space for them to process and share stories related to stigma in our community. Through my partners Het Huis van Bartels, a green oasis in the heart of Liendert, I will work with people with a migrant background and tap into their unique talents to open up and share their story.

And I have evidence this works! What would I have done without my talent as an artist? It helped me to accept my hiv status and focus on positive messages of hope for the hiv community. Even before I was diagnosed with hiv I already shared my talents and I realised that hiv did not change who I am. Through the support of organisations such as hello gorgeous, hiv vereniging and many others, I regained my identity and came out stronger than ever before. Now it is time for me to take action and inspire change in my community.

And you can be a local hero too! If you like my poster, get in touch and join my growing pool of talents through your own poster!

Are you getting excited as well? Join me through my facebook page or the website.

Have a great weekend.

Peace ,

Eliane