Mandela Day, Adriana’s Way – art for change

Nelson Mandela once said “Live life as though nobody is watching, and express yourself as though everyone is listening.” This is the heartbeat of Stories of Hope, an initiative launched in 2021 and dedicated to all courageous Heroes of Hope sharing their talent to break HIV stigma and discrimination.

In a world where silence fuels stigma, many Heroes of Hope choose art as their megaphone. They step into the spotlight not for fame, but to give a voice to those muted by shame and discrimination. Through dance, photography, poetry, painting, and performance, they transform their lived experience into expressions that resonate, agitate, and heal.

It is therefore with great honor that today, on Mandely Day 2025, we proudly share the portrait of a great friend and talent Adriana Bertini, a Brazilian artist and activist renowned for her decades long HIV activism through provocative art. Through her art she is able to build experiences and capture what matters in our HIV community, showing her commitment to fight HIV stigma. Read Adriana’s story here.

In many places in the world, where people living with HIV face stigma and discrimination, Heroes of Hope use their creativity to humanize the realities of people living with HIV. Art such as Adriana’s couture art contributes to creating safe spaces in our HIV community where dignity is restored and fear of stigma is replaced with connection.

So today, let’s express ourselves as if everyone is listening! Let’s admire the provocative works of Adriana, whose art has long defied HIV stigma, and honour a vision where expression becomes activism and art becomes hope. This is Mandela Day, Adriana’s way.

Happy Mandela Day! Peace,

Eliane

Our HIV community

The burden of the hiv epidemic has never only been carried by the nearly 85 million people infected by HIV since the beginning of the epidemic. The pain, loss and grief of dealing with and our fight against the HIV epidemic is shared by so many more; Orphans of parents that passed away who are discriminated, family members whose relations are strained, caregivers of people living with HIV, activists campaigning for PrEP access, and so on…

Two years after the launch of Stories of Hope on Mandela day 18th of July 2021, we would like to pay honour to these caregivers and the millions of people affected by HIV.

Nelson Mandela once said ‘If we are to accomplish anything in this world it will in equal measure be due to the work and achievement of others’. Therefore, let us remember their struggle and celebrate their contributions as well in our fight against the HIV epidemic and on-going stigma and discrimination.

In honour of the wise words of Nelson Mandela, as of now we will also bring their inspiring stories to the Stories of Hope platform. Because in the end, they are the biggest allies of people living with HIV and their stories are equally important to be recorded and told.

So, we are extremely proud to introduce Daria, our very first Hero of Hope who is not living with HIV herself. According to Daria, “what matters is that you can help others” to claim access to health services and create a HIV stigma free society.

We hope there will be many more people like Daria to join our growing community of Heroes of Hope. What connects us all is to realise a world where people living with HIV are healthy citizens free from stigma.

Ambassador of Hope

Today we are celebrating one year Stories of Hope! And we have achieved so much since our official launch on 18 July 2021, Mandela Day. Early last year, we started Stories of Hope with two Heroes, and since then our community has grown to eleven Heroes already!

You may remember that last year we highlighted the important role that Nelson Mandela fulfilled throughout his life for vulnerable people facing stigma of any kind.

Today, on Nelson’s birthday, we are proud to share a touching interview with our friend Adam Castillejo, and a true Ambassador of Hope for the global HIV community. We do hope that Adam will also be an inspiration to all of us!

Meanwhile we are very busy preparing for AIDS2022 as next week around this time we will be travelling to Montreal. We are so excited to connect to fellow activists, role models, and so many more inspiring people.

We also set ourselves a target, namely to capture and share at least one new Story of Hope on each conference day! To make this happen, we really need YOU!

So reach out to us and visit the Stories of Hope booth GVE013 at AIDS2022!

Memorable summer of 2021

Whilst we are nearing the end of a rainy summer, I would like to reflect on my summer time. It was actually very enjoyable no matter how I look at it! It started excellent by hearing news from my diabetes doctor that I was allowed to stop 3 more pills of my medication.

Then there was Mandela Day on the 18th of July where we shared our Stories of Hope through a photo exposition, and I had a great celebratory closing party with my heroes!

A few days later I celebrated my kids’ birthdays which all of you know happen for all three of them within 4 days! My oldest daughter turned 20, one of my sons 15 and the other 13. What a blessed week for all of us. 

Then we took off for a few days in the South of the Netherlands, Maastricht. What a beautiful place and surroundings. It was a short stay but full of sportive activities as I like to keep my Healthy New Me in shape! We walked hills, went into caves which still made me accomplish my sports targets every single day during my holiday! And on top of that we went one day on an (e-)bike and mounted some impressive hills with equally impressive names like the Dead man’s alley (Dodemansweg in Dutch). I was so proud to be able to get to the top of these hills and admire the incredible view. Who says Holland is flat?

Despite the many showers it was real fun to cycle together and sometimes get surprised by a shower and hide under a tree, still ending up wet because of the drops getting through the leafs. We never gave up, no matter how the weather wanted to stand in our way.  It was a truly memorable time in Limburg.

Back in my hometown, I was just on time to join Amsterdam Pride. It was my lucky day because on many years whilst in the Netherlands, Pride week would always happen when I am on holidays abroad, so this time I could attend for the first time! Joining the Pride as part of the BI plus walk and wearing my HIV stigmafighter t-shirt and U=U bandana also allowed me to spread the message of UequalsU and to fight HIV stigma.

Being part of the Pride helped me to convey these two messages to a few more people. It felt great joining so many activists and LGBTQ+ communities in march. I keep on dreaming to one day see people in my country Burundi wave the Rainbow flag like here!

Beautiful people, Do not let the fear of corona conquer your life! As long as you try to stick to the rules, it’s ok to have a little fun. We really should accept for us to live with corona for many years to come and start adapting to the situation, dealing with it just like we have dealt with many other pandemics.

Nelson Mandela once said that “A WINNER IS A DREAMER WHO NEVER GIVES UP”. Who know one day we will win this battle? keep on fighting for change!

I had a great, fruitful and memorable summer of 2021.

PEACE,

Eliane

Meet our Heroes!

Today, Mandela Day 2021, we proudly present our very first eight Stories of Hope! Since we started to work with our Heroes in April this year, we collected stories related to HIV, depression and vitiligo. Our aim is to grow Stories of Hope into a platform where people facing stigma are able to share their unique experience on how stigma can be overcome through their talents.

There is no better moment to share our first collection of Stories of Hope than Mandela Day as Mandela continues to be a big inspiration to the world. In the spirit of Mandela’s legacy, we truly believe that Stories of Hope will give people inspiration to fight stigma and bring positive change in our communities. In the words of the great Nelson Mandela: “A winner is a dreamer who never gives up.”

Peace,

Eliane