LGBTQI+ health matters: A journey of advocacy and action

Dear HIV community, how have you been?

I was honoured to speak at the second European LGBTQI+ Health Conference in Brussels—a vibrant gathering of activists, healthcare professionals, researchers, community organizations, and affected individuals from across Europe. The event was filled with incredible discussions, inspiring stories, and groundbreaking initiatives. Here are some impressions, hope you like them!

Addressing stigma through community-led harm reduction initiatives

During this session, my contribution focused on broad spectrum harm reduction Initiatives in the LGBTQI+ context. I shared my personal journey overcoming HIV stigma, highlighting how our talents may transform us into community icons. As one of the initiators of local grassroots initiatives driven by migrants living with HIV, I spoke about the impact of sharing lived experiences and empowering local HIV communities. I also shared my experience as a PrEP advocate and volunteer, working with local organizations such as PrEPNu to ensure access to PrEP as an essential preventive tool.

We also heard from Ismal from AIDS Action Europe, who discussed harm reduction in the chemsex context. Their organization provides training manuals and best practice guidelines for delivering health services tailored to chemsex users. They conduct trainer workshops, facilitate knowledge exchanges, and offer grants for translations and webinars, ensuring widespread accessibility of resources.

Another inspiring initiative came from Osmely José of Accion Triangulo, who uses art and cinema as educational tools through Pride Positivo. Their film screenings actively combat stigma, and they’ve developed an innovative concept—the PAE pill—as a symbol of HIV destigmatization, based on real-life experiences of stigma in healthcare and community settings.

PrEP access & prevention strategies

One of the most crucial discussions revolved around PrEP accessibility. As a volunteer at PrEPnu, I shared our digital outreach strategies, which allow people to access services through PrEPNu’s online platform. Additionally, our outreach teams engage with the LGBTQI+ community at festivals, pride walks, workshops, parties, saunas, and health clinics, ensuring widespread awareness. Unfortunately, PrEP is currently only available at a cost (+/- 30 euros per month) in the Netherlands, which remains a significant barrier.

Other European organizations shared their approaches:

  • Romania: Mihai from Checkpoint ARAS who opened six PrEP checkpoints under the Checkpoint ARAS Network. These community clinics, situated within hospitals, create safe, non-intimidating environments for key populations. PrEP is also not free in Romania.
  • Serbia: Duga Association, an LGBTQI+ community-led organization, launched the First Checkpoint offering free HIV testing, doctor consultations, and psychological support. This effort counteracts stigma, geographic barriers, and fragmented services that often discourage people—especially those outside big cities—from seeking care. While PrEP is available in Belgrade pharmacies, it costs €43 per month, making accessibility difficult.

Do you remember the Barcelona checkpoints I visited last year? All these initiatives really create a momentum around PrEP in Europe. I sincerely hope that one day we will see these community-led checkpoints in the Netherlands as well, they are really complementary to the great work already done by PrEPNu! So let us keep fighting for PrEP diversity!

HIV dragtivism

Throughout the conference I had already been highlighting how through creative activism, including HIV dragtivism, we are able to challenge political and healthcare perceptions, pushing for inclusive policies.

Somewhat unplanned, but always ready, I was asked to perform as Eric the Dragking. So on the closing night, participants were able to experience Eric the Dragking stomping HIV stigma alongside them—a symbolic and empowering moment that energized many attendees. In fact, numerous organizations expressed enthusiasm about inviting Eric to their countries to further break HIV stigma and raise PrEP awareness!

The urgent need for global action

While UNAIDS and numerous organizations continue advocating to end HIV and AIDS by 2030, the reality remains troubling: prevention tools exist, yet communities still struggle for access due to political hurdles and greedy pharmaceutical interests. Health is a human right, yet so many LGBTQI+ individuals lack the protections they deserve. So is this target still realistic and how will we reach it? I am convinced that conferences such as these contribute by creating the much-needed space for collaboration, knowledge-sharing, and empowerment. Let’s hope the Netherlands HIV community is listening to their European neighbours!

Let’s hear a few powerful reflections I collected from fellow participants:

> “In times of increasing polarization and prejudice against LGBTQI+ people, institutions, healthcare providers, advocates, and scholars must unite to promote health for all. This conference catalyzed new efforts, bringing together passionate individuals from across Europe and beyond. Let’s work together to foster well-being for everyone!” > — Tabea Hassler, Researcher at the University of Zurich

> “It was incredible to network with so many changemakers improving LGBTQI+ health across Europe. The passion, enthusiasm, and energy of attendees were truly inspiring, and I have no doubt that real action and collaborations will emerge from this event.” > — John Gilmore, University College Dublin

> “The 2nd European Conference on LGBTIQ+ Community Health definitely brought together the best LGBTIQ+ thinkers and practitioners from across Europe at such a crucial time as this, to form new alliances, strengthen our vision, and refine our collective focus.”> —Dr Harvey Kennedy-Pitt

United, we will win this fight

The fight for health equity and LGBTQI+ rights is ongoing—but together, we are strong. Through collaboration, activism, and unwavering determination, we will dismantle barriers and demand accessible, stigma-free healthcare for all.

I urge you to have a look at the manifesto we drafted together during the conference: The manisfesto recognises that LGBTQI+ communities continue to face systemic inequalities, institutional violence, and barriers to essential healthcare. In the manifesto we state that we refuse to accept a system that neglects lived experience, silences community-based knowledge, and denies universal access to care. We demand the recognition of peer support as legitimate healthcare, PrEP access for all, the integration of LGBTQI+ realities in medical training, structural support for community health centers, and our rightful place in public health decision-making. Justice in healthcare is not optional – it’s a necessity. Stand with us. Sign the manifesto. Be part of the change!

Thanks Stephen Barris from Ex Aequo for organising this wonderful conference and looking forward to the next edition!

Let’s keep pushing forward. We are the working force, and our voices matter.

Peace,

Eliane

Memorable summer of 2021

Whilst we are nearing the end of a rainy summer, I would like to reflect on my summer time. It was actually very enjoyable no matter how I look at it! It started excellent by hearing news from my diabetes doctor that I was allowed to stop 3 more pills of my medication.

Then there was Mandela Day on the 18th of July where we shared our Stories of Hope through a photo exposition, and I had a great celebratory closing party with my heroes!

A few days later I celebrated my kids’ birthdays which all of you know happen for all three of them within 4 days! My oldest daughter turned 20, one of my sons 15 and the other 13. What a blessed week for all of us. 

Then we took off for a few days in the South of the Netherlands, Maastricht. What a beautiful place and surroundings. It was a short stay but full of sportive activities as I like to keep my Healthy New Me in shape! We walked hills, went into caves which still made me accomplish my sports targets every single day during my holiday! And on top of that we went one day on an (e-)bike and mounted some impressive hills with equally impressive names like the Dead man’s alley (Dodemansweg in Dutch). I was so proud to be able to get to the top of these hills and admire the incredible view. Who says Holland is flat?

Despite the many showers it was real fun to cycle together and sometimes get surprised by a shower and hide under a tree, still ending up wet because of the drops getting through the leafs. We never gave up, no matter how the weather wanted to stand in our way.  It was a truly memorable time in Limburg.

Back in my hometown, I was just on time to join Amsterdam Pride. It was my lucky day because on many years whilst in the Netherlands, Pride week would always happen when I am on holidays abroad, so this time I could attend for the first time! Joining the Pride as part of the BI plus walk and wearing my HIV stigmafighter t-shirt and U=U bandana also allowed me to spread the message of UequalsU and to fight HIV stigma.

Being part of the Pride helped me to convey these two messages to a few more people. It felt great joining so many activists and LGBTQ+ communities in march. I keep on dreaming to one day see people in my country Burundi wave the Rainbow flag like here!

Beautiful people, Do not let the fear of corona conquer your life! As long as you try to stick to the rules, it’s ok to have a little fun. We really should accept for us to live with corona for many years to come and start adapting to the situation, dealing with it just like we have dealt with many other pandemics.

Nelson Mandela once said that “A WINNER IS A DREAMER WHO NEVER GIVES UP”. Who know one day we will win this battle? keep on fighting for change!

I had a great, fruitful and memorable summer of 2021.

PEACE,

Eliane